I'm going to be optimistic on your behalf, because it sounds like things are coming together, even if more slowly and with fewer explanations than you would like. I think you are handling it all the best and only way you can, even if it's still scary and anxiety inducing and just makes you angry at times. (I actually do better when I'm pissed off at getting what info I need, but I'm no joy to be around.)

It's ridiculous that you have to do your own research on this, but it seems to be that way with almost any kind of cancer, any more. I don't know if it's a product of them knowing more or recognizing it sooner or the treatments are just getting so much more specific for different kinds of cancer -- but I think it's just gotten more confusing for those who have to deal with it.

And I'm really happy that you and your treatment ocnologist are on the same page about quality of life as far as options go. I share your feelings about that.

I do wish I were closer so I could be a more tangible help, but I'm not, so I will continue to send good vibes and healing love your way and light a candle for the treatment to be as side-effect free as is possible for you.

{{Hugs}}