gwyn: (bucky confusedface)
Hey, would any of you know why a bunch of my Dreamwidth icons suddenly won't load? I noticed it a few days ago when replying to someone's post, and the icon I chose just had a question mark in the middle and didn't seem to show up, even after I hit post. It's happening consistently with certain icons, and when I went in to look at my list of icons, a bunch just don't show up or they have the question mark. There's nothing different about them, I have a paid account and am under the icon limit, but they just abruptly don't work.

When I first went freelance, I did all the sosh meeds you're supposed to do to make sure your business is out there where people can find you. Of course that included twitter, but I always hated it and only kept it so that I could read a few people's pages, especially after they started making it hard to read without an account or being logged in. When that fucking slime mold took over, I wanted to delete my account, but they made it impossible for me, and for months I've been trying to get into it so I could remove it. I finally got in and deactivated it, and did set up a bluesky account, although I'll probably only use that as much as I used the bird site. I just don't love having this tiny character limit, and it's such a noisy interface compared to the aspects of tumblr that I like. The less said about FB, the better.

But anyway, if you want to connect there, I am under my wallet name, and since someone beat me to my preferred handle, it's not as simple, but it's my first name + the first three letters of my last name + B. (I used the B--or b, since everything's lowercase I guess?--because when my sister and I were born, we were going to be adopted, so for about five days, our birth certificates were just Baby A [her] and Baby B [me]. I still have these, and there was a period where I couldn't find my named birth certificate, but I had to replace my license and boy howdy, did no one like the fact that it just said Baby B. That was an ordeal, let me tell you, even with my social security card and everything else.) I'm definitely wary about that space, and I'm only following a few people so far since I don't know who all is over there. But if you are and want to connect, I'm there!
gwyn: (spuffy band kathyh)
Ricardo Tubbs says my subject line to Sonny Crockett in a Miami Vice episode, and my friend and I have been saying it to each other for what, like, 40 years now? It's the perfect retort for when someone is shocked that you know some weird fact.

Anyway, I read a book! You guys are probably thinking so what, big deal, especially those of you who post every Wednesday what books you've read that week. But ever since I went freelance full time, and especially so since my freelance work became 95 percent fiction editing, I have not been able to read for pleasure. It's worse than a busman's holiday, it's just been a mostly joyless experience when I tried to read any books, even nonfiction, just because I cannot turn off the copyeditor and worse, I can't focus on something that isn't work. So much of what I read for work, too, is really terrible garbage writing, which has sapped the pleasure out of the whole experience.

To be honest, I think it first started when my sister died--I found myself really struggling to do anything that required concentration for longer than, say, the course of a magazine article. For a few years, I couldn't write, either, and mostly seemed able to only vid or do something short for Yuletide. My focus was shot. Then the freelance meant my focus was like a laser beam on my projects, which often came in at the same time and I'd find myself editing a bunch of magazine articles or proofing a 128-page issue, editing a huge travel guidebook, and editing a romance book, and I'd be sick with overwork and my hair would be falling out from stress. Freelance is like that, it's the feast or famine thing.

Anyway, a few years ago, I was taking a bit of a break and I read Song of Achilles and The Martian over the course of a couple months, but that was it. I never got back in the habit of being able to switch off work and read again, no matter how many books I bought through my Nook app or at Powell's or whatever. I kept thinking I would buy them, and that would make me feel like I had to read them, but it didn't work.

You just get so tired of fiction when you literally read it for a job. Especially because the really good authors are far and few between, and I'd find myself having the will to live sapped out of me by some of the unadulterated, pure shit I was seeing daily. I don't understand how some of these writers get contracts. It was especially noxious that it spilled over to nonfiction for me, because that was always a refuge when I would get tired of fiction in the past.

A lot of my clients have either stopped publishing, or found someone (usually cheaper) else, or just plain disappeared, and I haven't been in the mood since my diagnosis to chase after new work. I should, don't get me wrong, but I just don't care much these days. So I started thinking to myself, maybe I should give myself a nonfiction book to read, just as a treat. I'd watched John Oliver's episode of Hot Ones and he had so wildly, enthusiastically recced a book called Say Nothing, about the Troubles in Northern Ireland, that I went looking for it at the library, because I love him and I figured it'd be a safe bet to be good. I was like one thousandth in line but it eventually came up, right in time for the Hulu limited series of the story to show up.

And you guys, I finished it! I read a whole huge thousand-page book! (In my reading settings, anyway.) Well, about 350 of those pages were end notes, but still! I did it! And I'm now reading a fiction book I bought ages ago, The Golem and the Jinni, although that's definitely slower going and since I don't have a timeline, I'm reading less speedily. (That's my other issue--due to the nature of my work, I'm the slowest reader in the world. It's very hard to turn the dial up and remind myself I don't have to spot every punctuation detail.) Plus I still want to get back to the physical book I took to the Silent Book Group meeting, especially if I go to the meeting next month.

I know it probably seems silly to people who read all the time. I used to--my ex even commented on that, saying "you used to be a voracious reader" and it's true, especially when I was bus commuting to downtown Seattle, when I would read a book or two a week. But when I returned the ebook of Say Nothing, I felt so accomplished! Ridiculous too, but hey.
gwyn: (stabbity guy tribades)
Ugh, god, I was so looking forward to sitting down and sorting out my thoughts on The Bear, especially season 3, and writing out my (as [personal profile] minim_calibre called it) Grand Unified Theory of Season Threes, and then this weird technology hell vortex swept me up and spit me out somewhere I had no access to the interwebs.

I got fiber optic a number of years ago when it first became available--I hopped on it immediately, like the sales people came to call and I was just like "yes, now, set an appointment immediately" and they were baffled and didn't know what to do without spieling their spiel. Century Link put in this giant hole in the side of my house, where the cables ran through into this big, heavy black box, which I never really knew what it was. I just thought it was the box that gave me internet. The first weekend, because I'd moved the black box slightly to clean up the mess the hole in my wall left, I lost internet because it turned out they used this janky, old-style system of like...speaker wire, if you know what that used to be: little copper lines all twisted together, covered by plastic, and then you twisted the uncovered copper end around a screw that carried the signal from your amp or whatever, or you poked the copper ends into a hole and locked the speaker line in.

The black box had about eight of these janky little teeny tiny microscopic speaker wire-type lines, and a bunch of them came loose that first weekend, so I had to have a repair guy come out and fix it. That should have been my first clue, I guess, that it was unreliable and chintzy, but all these years, I just was super careful never to touch that black box unless I had to, and it's such a short cable coming into the house anyway that it was easy not to move it, because I almost really couldn't.

But a little over a week ago, the box started beeping at me every 13 minutes, and I kept pressing this button and it would stop, but resume at the 24 hour point. So I decided to look at the box and despite how heavy it is and the super short cable, I could see that it was saying my battery was dying, but there was no way for me to change it. Unforch, by examining it, I pulled--you guessed it--the stupid janky wires loose and I could not for love or money put them back in. So I was only able to use my phone for cell data, because everything else in my house, including my iPad, is WiFi only. I asked minim if her spouse, who is an A/V god and has helped me before in weird situations, knew of any tricks, and they ended up coming down that night after dinner, and he brought his nifty incredibly tiny tools and this magical lighted magnifying visor, and put the wires back in, and I had interwebs again! They are honestly just the best. ♥

I also found out that heavy black box is actually a battery backup itself--and there's no way a regular person can change out the battery, which is basically like a car battery. He also told me that CLink stopped using it as the conduit for the fiber cable, because their household didn't have that when their fiber line was installed, even though he'd done all this prep for it.

But lo, the next day, the hellscape universe I live in decided that the line was going to stop working altogether. So CenturyLink, because they suck, told me, after over an hour waiting for customer service, that they would have a tech out in 9 days. I was supposed to just survive without internet for 9 days. The thing is, it used to be a luxury, but it's no longer something you can call a luxury, especially when you are self-employed and have no one to rely on for IT help. It's basically your life blood. Someone told me about hotspots, but I didn't totally understand it, so I set about trying to understand the concept and how to use my cell phone as a personal hotspot (the library checks them out, yay! but the Hold list to check them out is over 1,200 long, boo!).

And I could have happily gone to the library or Starbucks for a lot of things (I didn't have any new fanfic on my iPad! All my books had somehow been subsumed back into the cloud instead of downloaded! Tumblr on mobile sucks because it's a resource hog and I don't have xkit or adblockers on it!), and because I have been lazy as hell, I still had DirectTV satellite so I could at least watch some TV since streaming was out. Except...my iPad sucks for typing on and even if I use a bluetooth keyboard, it lags and is just generally awful, and of course, the night min and her hubs came down, my laptop had died.

Or at least, it was trapped in an install loop, which had happened to me once when I first bought it and it put High Sierra on and apparently there was some kind of problem for a lot of people where it would just try to install over and over again, but never get there, and you couldn't do anything to stop it. For some reason, even though I'd only set it to install a couple of minor, minor updates, it decided to reinstall High Sierra and was stuck there. So I couldn't take my laptop anywhere to get WiFi and do some basic stuff, including some unusual work stuff. I wasn't sure how well my desktop computer would do with a personal hotspot phone, but I was going to try when...it magically started working.

All of a sudden, the WiFi was working (just after the little IT-business guys I use when things go haywire came and took my laptop away). Like, I just didn't understand--all the lights were still lighting on the black box, etc. I was like, okay, well, I will wait to cancel my appointment until the day before, and just be good with that, but then as soon as I got my laptop back (all nicely updated on the OS as far as it would go for that much older model I have), and settled in to finish the streaming movie I'd had interrupted and scroll through tumblr, it went out again. The modem was lit up with all the right lights, everything seemed like it should work, but it wouldn't. So back to personal hotspotting, but at least now I could go to the library or Starbucks and use theirs, if my gastrointestinal issues would allow me out of the house. (That's been honestly one of my biggest problems: something I'm getting as chemo is just causing constant GI problems, and it tethers me to the house in ways I really hate because I can't always trust I'm not going to have a humiliating accident.)

Anyways, it annoyed me that the lights on the modem indicated things were okay. So eventually I unplugged it, and of course, as soon as I plugged it back in, things worked again. I'm keeping a weather eye out for it all, though. I did cancel the appointment for the tech person, because at the beginning, when I found out it would take them nine fucking days to get here, I called Quantum Fiber, which CLink is forcing customers to move to eventually anyway (I found this out after a whole other customer service issue a month or so ago, CLink sucks), just to see if they could come install a whole new thing anyway and skip the CLink drama, and they had the same time frame. But I was so disgusted and upset that I decided to go ahead and just do the Quantum thing, so they'll be here on the 3rd. It's not ideal, if this keeps going in and out, to be stuck like this for the next week, but at least now I have different workarounds and my precious old laptop is back.

I warned the Quantum people about the big black box, and I really don't think they understood what I was talking about, so a part of me is kind of...doubtful, I guess, that it will really be installed, but if I can pay less for slightly faster fiber optic and get out of this fucking shitstorm with CLink, that's what matters. It's amazing how hard it is to rely on cell data only (even if you have unlimited, they will throttle you over a certain amount of use) when you're trying to do video calls to your doctors or therapy or whatever, or hope there's nothing interfering in your signal when you live in an area that's notorious for cell problems.

Anyways, I still plan to sit myself down and write up a conversation about The Bear (and my Grand Unified Theory of Season Threes), but man, I am just...I am le tired. So, so tired, both emotionally (I literally burst into tears when the customer "service" person said nine days!) and physically (everything about treatment is just draining the fuck out of me). I am way too Old and non-technical to be dealing with this shit.
gwyn: (wendy fights like girl)
You know that thing in my subject line, that thing where you think of a retort to something someone says two days later, usually in the shower or in bed at 3 in the morning? I actually thought of a retort to someone being an asshole to me in real time a short while ago, and I'm so fucking proud of myself that I've been annoying everyone by telling them about it, so now I'm annoying you.

I was at the grocery store and was having trouble juggling my cane (sometimes I need the cane or the walking pole to help me out), my mask, and my reusable bag and my purse or whatever. And I don't even wear fancy masks, just the surgical ones, but I'm pretty much stuck now with them forever when I go anywhere, because my immune system is so suppressed by these chemo drugs. And this guy was behind me, waiting for me to get out of the way so he could get a little cart, and he made this kind of snotty remark, I still don't really remember what he said, but just something about me having all that trouble when no one needs masks or something, but he was just so frigging condescending and smug about it.

And I stared at him as dead-eyed and flat affected as I could, and said in a mild voice, "Do you have bone marrow cancer?"

He was completely stymied by that. I could tell he didn't know how to process the question, and he went, "What?" and then seemed to almost regroup, and then went "What? No."

So then I left it a beat, and said, still in a totally flat voice, "Well, I do, and it’s incurable so I will have to wear masks for the rest of my life or until COVID truly goes away, because of all the assholes like you who don’t." And then I walked away.

He was very angry, I could tell. I had to go hide in the wine section for a while to avoid seeing him. But man, that totally felt so great. I've never been able to come up with a put-down in real time. And I live in an area that at one point during the height of the vaccination roll-out was the most-vaccinated zip code in the US. It's not like there aren't tons of people still wearing masks here, too, I see them at the stores all the time, in places where people have constant contact with others.

It was totally inspired by Lucy Liu as Joan Watson in Elementary, I think--I'd recently been rewatching it, and there was this episode where she looks at a guy blandly, one who's been giving them massive shit and is a smug jerk about it, and she says, "What's the hardest you've ever been hit?" and he goes into a mental shut-down. So that's the secret, maybe: channel Joan Watson.

Anyway, random post is random. I'm going to try to do a The Bear post this week sometime.
gwyn: (beaten cap shield)
The past few weeks have been...interesting, to say the least. Shortly after the last time I posted a real entry here, I was having some bad GI problems, and could tell it was going to make me pass out. The last time I passed out in the bathroom, after I'd had some really horrific bleeding during Moh's surgery on my face for skin cancer, I severely injured myself (my bathroom's the size of a postage stamp), and so this time I was like, I will get down on the floor so I will be there when I pass out. I knew I couldn't make it to the bed.

Except, of course, I started to white out and then my ankle snapped out from underneath me, and boom, I figured I'd broken it. I couldn't put any weight on it. I managed to drag myself to my bed, and had preventively unlocked the front door for my friend Keith, because he was coming over. When he got here and *finally* heard me yelling to let himself in, I made him get my antinausea and antidiarrheal meds, and once I figured I could make it to the ER, had him take me there. Stupidly, I went to the one I went to last time, because I know it, I guess. It took over two hours to get x-rays, and then they made me get an EKG because I'd mentioned almost passing out (and instantly regretted it), and then they wanted to draw blood and get a urine sample (which...is almost impossible for people with female-type equipment to do with a busted ankle), and I begged them not to put in an IV because it was my week off chemo. They had a lot of trouble getting blood because I was so dehydrated by then, but god, was I glad I had stuck to my guns when after six and a half hours, there was no sign of seeing a doctor.

I have MyChart on my phone because of my situation, so I'd seen that no fractures were detected on x-rays, and some other people we'd been kind of camped out with, who'd come in before us, still hadn't seen a doc either so they were starting to leave in small groups. By the time one guy urinated on himself, his seat, and the floor, I was done. It really annoyed me because I didn't know what kind of soft tissue damage I could have, and the nurse had actually said, "We're more concerned about your almost passing out" but I was like "I'm not! It happens all the time!"

I did manage to get in to see the sort of floating internal medicine guy in my NP's department on Tuesday, miraculously, and he said there were probably some small tears in the tendons but he felt good about my lateral and forward/back movement. When I had my treatment appointment the next day, I mentioned all this to the ARNP, and she told me that it was actually very good that I'd told them about the almost passing out so that they would know it wasn't a "pathological fracture." Which...I was like "what."

Apparently, myeloma patients, since we have fucked up bone marrow and holes in our bones and stuff, can just get random fractures from things. This disease is so much fucking fun. Anyway, all of the medical professionals kept telling me it would take a longer time to heal, which is sort of true. I did my best to keep it wrapped and elevated and stuff (the RICE thing has really been rethought by a lot of people in the field), but of course, it was my driving foot and I live alone, so that was a lot of begging for rides and things, and using Instacart (which I hate, because my orders are always wrong) and food deliveries. I couldn't even go outside and water plants! (Too many stairs.)

I'm still plateaued on my myeloma lab work numbers, and have been wondering about what it looks like to just stop treatment, what happens in palliative care, etc. And trying to figure out when/how to broach that subject with Dr. Li. There's just so little I can find, everyone is desperate to stay alive no matter the cost, and whenever I think I've found a good "stopping treatment" post, it turns out to be about stopping treatment of Drug X. So it's a conversation I probably need but I got pre-empted by Dr. Li last week when he said "We should probably talk about next steps." That is NEVER a good sentence when you have cancer.

He wants to use a different drug to shake loose the holdout, really strong myeloma cells. He'd told me before that my M protein spike (the magic number thingie they look at to determine remission status) went down super fast because those were weaker cells, but now I'm stuck at 0.2 because those are the really strong cells that keep replicating and are much harder to knock out. He wants to use Cytoxan, which I am extremely familiar with because I watched it destroy my mom, my sister, and a friend. Like, the brutality of what it did to my sister is just...it's really hard for me to talk about. I can't even talk about my twin without crying, anyway.

He said it would be a low dose, but it sounds like a lot of pills to take at once, and the side effects are still losing your hair, extreme nausea, and extreme fatigue. As shallow as it sounds, I don't want to lose my hair--I'm too ugly to rock a bald look, and when I was losing my hair last fall from the shock to my body of treatment, I was surprised at how much it affected me. I had so many flashbacks to my sister sobbing uncontrollably in the shower as her hair came out in clumps, and I was unable to do anything to help her. And you know, I'm already dealing with nausea and fatigue, and I have to take care of myself, there's no one here to help me and being so fatigued I can't get out of bed...well, how the hell is that supposed to work when I have a house and a cat and myself to take care of.

I don't have to make a decision right now, but I have no idea what to do. I'm so fucking tired. In my last post, I talked about that, but I'm just...so sick of going there week after week, and nothing changes, and I said at the beginning I didn't want to prolong my life at the expense of suffering and I was assured that treatment for this disease wasn't like it is for other cancers, so I wouldn't be "losing your hair and barfing your guts up" but here we are.

Anyway. Today is the worst of all holidays, Independence Day, which no one calls it that anymore, it's just Fourth of July but I always think that sounds so much dumber. It's just a holiday for assholes, so I'm girding my loins for all the exploding shit and finger-losing, eye-losing, house-burning shenanigans tonight and trying to make a cozy hiding spot for my little decrepit old man kitty. (I will of course be doing my annual ID movie watch of the first two Captain America movies.) At least we have something to take the edge off things--I'm glued to the UK elections. I hope the fucking Tories get obliterated, though I know they probably won't. The problems, like ours, are far too deep-rooted now after all these years to fix easily even if someone decent gets to be PM (which clearly Starmer isn't), but I feel a little more hope for you guys than I do about our tire-fire clusterfuck over here.

I really want to talk about The Bear season 3, does anyone else want to if I make a post?
gwyn: (Default)
I have been so long overdue for an update on things that I don't know where to start. I was intending to kind of use this place as a diary of sorts, to keep track of things with the cancer, but it seems like I just fell off more due to malaise than anything else--it'd be nice to be able to say I was just busy with chemo, etc., but the truth is that when it comes time to write down what's happening, I just...don't.

Partly it's because it's very boring in a lot of ways. I go every week to the clinic for injections, and I take the pills I'm supposed to take, and I get blood drawn and check my numbers when they come in, and I fight fatigue and GI issues and the neverending pain, and that's sort of it. It's been about a year now since I started the chemical portion of treatment, and since this cancer has no cure, that will be part of my life for the rest of however long I'm around. (Proof that my ex, who has taken me to treatment multiple times, never pays attention to anything I say: He's asked me a couple times when I'll be finished with chemo, and when I asked him "do you even know what's wrong with me?" he went "...some kind of...cancer?")

A while ago, I "graduated" to being able to go to treatment for three weeks and then one week off (of course, the week off never coincides with the week off from Revlimid, the obscenely expensive drug that I have to take), which my oncologist thought might help with the awful neuropathy in my feet, but it didn't. I'm still grateful to have the week off though, especially since it comes after the infusion of zometa, the bone drug, which usually makes me feel really shitty. Apparently, most people don't have the reactions I do to it, so that's fun, because no one knows what to do about that.

I was rewatching Elementary, because that was the only Sherlock Holmes thing I've ever enjoyed and it seemed like a good show to have on in the background while I worked, and I got to season 3 and there was this scene that I remember being so impressed by Jonny Lee Miller in, but this time seeing it, it hit me in the gut like a punch from a heavyweight boxer. He was talking about his sobriety, but it couldn't have been more perfect to describe how I feel, the tediousness and the general sense of pointlessness. I'll put the video embed behind a cut here in case you don't want to see it on your feed.Read more... )

I think it's hard because most of the people I've met in the myeloma support groups have kids/spouses/sibs/parents even sometimes, and so they can be almost aggressively positive at me about having reasons to live. But you know, my family's all gone, and friends move away or drift away, and it's not only harder to make friends as an Old but then you throw in the cancer thing, and it feels like your life is so small. There's a person on metafilter I've gotten some good advice from who also has multiple myeloma and she said something I thought was really good, in response to a person dealing with a very difficult diagnosis of a cancer I've had before: "People who do not have cancer simply don't get it - no matter how great their intentions. You could update your friends on every bit of news, every single blood test, detailed accounts of every scan, and they still would not understand the relentless nature of this - what it's like to truly be facing your own mortality, to live from one bit of shitty news to the next, to finally get good news, but find yourself waiting for the other shoe to drop. And especially what it's like to live like this for years and years."

I think you can extend that to a lot of serious, chronic illnesses and disabilities, too. Ugh, I didn't mean to be such a downer, it's just very much where my head is at. I think because right now, they're doing a lot of the tests that I did a year ago, to see where I'm at--MRIs, and such, and I can tell that my oncologist wants to have me do another bone marrow biopsy, which is the only test I'm really afraid of because last time I ended up having whole-body muscle spasms later, and I thought I was actually dying.

But you know, it hasn't been all awful. Of the good: I got my cataract surgery done! I see reel gud now! The place my eye doctor wanted me to go to was such a clusterfuck, and I finally got a referral to another place, and my eye doc said I won the lottery on my left eye because it's absolutely perfect and the best change he's ever seen. My right still has an astigmatism but it's not bad, and I chose distance vision so I have to wear reading glasses to see anything even a couple feet from my face, but it's such a trip after being almost legally blind to suddenly be out here seeing with no aids. I have a pair of just wearing around progressive lenses and a pair of computer glasses, but the lenses are completely within the frames instead of sticking out an inch, and I just find that wild. I also do have a secondary cataract in my right eye, but they warned me it would probably happen because of the dexamethasone I take, and I'll get that zapped (it's just a quick laser blast, I guess) this summer.

I got to see [personal profile] killabeez last month when she came up to help her parents out, and that was wonderful. It was a gorgeous day and we had breakfast at a cafe on Alki beach, and then walked along the beach and soaked up the sun.

Blues is still hanging around and being his usual awful feline self. His kidney disease has advanced very quickly, to stage 3, and he's very thin and now I know how some of my doctors feel because I sometimes can't get him to eat even things he used to love and I'm always like Mrs. Claus in Rudolph, "eat, eat, Papa," but just like me, he isn't as interested. He ran away the other night and scared me half to death, so he's still got some pep, but I am trying to come to terms with the fact that it'll be sooner rather than later. He's really the main reason I'm doing any of this treatment stuff, so I'm not sure what will happen after that.

I signed up as usual for Into a Bar, and I got, as I often do, the one character I don't know what to do with, so Bucky Barnes is going to meet Fak from the Bear, and...we will see what I can do with that. I really haven't been writing much at all, outside of birthday/Yuletide obligations, but I'm actually hoping I can finish the WIP I was posting before it seemed like I faded away. I know no one was really reading it, but it just bugs me so much that it's unfinished with only two chapters to go. It seems cursed--I started writing about T'Challa right when Chadwick Boseman died, then there was a bunch of life crap that happened to me, then there was the insurrection, then I got fucking cancer...I don't know. Oh, now the latest is that Evernote shut down, and I cannot get into the app anymore at all and I had a bunch of notes for the final chapters there, and fuck them. So I hope I can do okay without all the shit I wrote before.

This is certainly long enough! I am really, truly going to try to be better about keeping track of things here. I say that all the time, but I do want to remember when and how things happen, and my memory is for shit these days.
gwyn: (8ball wizzicons)
It is hot as balls here in the PNW, and with the way so many of the drugs I'm taking dysregulate my temperature, it's even more fun than the usual PNW heat waves. I'm lucky in that I have a window A/C unit, unlike so many people here, but the only place I could put it was in the kitchen, which means that most of the rest of the house doesn't cool down much. I've tried using a box fan to blow the cooler air out to the rest of the house but...it's not super successful. It's especially bad on weekends, because I not only have treatment, which makes me feel crappy, on Fridays usually, but I also take a big-ass dose of steroids on Saturday so I sweat like a pig regardless of weather.

Anyways, lots of stuff going on lately, it seems. I was beyond thrilled that I managed to feel good enough to make it to Barbie with [personal profile] minim_calibre and her fam, the first movie I'd been to since the pain in my neck/shoulders started way last fall. I can totally understand the complaints or issues that people have with it, and yet I do not care at all and I absolutely loved it.

Some good changes )

Some not so great changes )

Has anyone else watched The Bear? I am just bananas about it and yet I've only been able to prod a few people to watch it. I thought at first I would hate it, because it was so much stuff I can't stand in the first couple episodes, but then somewhere along the line I just started to really get into it, and when season 2 dropped recently, I actually binged it in one day, something I never do because I hate binge-watching. Especially episodes 4 and 7, I was just so moved by them and their quiet, emotional beats and character studies...it's just the best show. I want Carmy to have nice things.
gwyn: (middleman german film)
Oh man, it's been over two months since I posted (except for my Into a Bar story) and I don't even know where to start, especially on the stuff that's happening with The Cancer. A lot has happened since the Drama Butter, but in a way not much is happening, either. I'm mostly just enduring, and feeling pretty hopeless and miserable, but that's never much fun to post about and it is still pretty painful to do much typing.

So, what's been happening...
Cancer related stuff )

Other life stuff )
gwyn: (veronica takethat _jems_)
(Subject refers to a picture of Isabella Rossellini on the Tom and Lorenzo fashion site a number of years ago, where she wore a gown that had Madama Butterfly printed on it in letters. The way the dress folded made it look like it said DRAMA BUTTER, and in my head, this entire stupid story has me shouting DRAMA BUTTER all the way through it like some gibbering, jangling jester.)

Well, I definitely fell down on the updates part of dreamwidth, and then on the "post about something fannish for once" part. In my defense, it has been A COUPLE OF WEEKS. Just...so much. I'll try to organize in bits so you don't have to read all of it. Like I said, I've been wanting to use this as not just a vehicle to communicate with friends, but also to keep track for myself.

I was supposed to finish radiation treatment Wednesday April 19...[John Mulaney voice} AND THEN I DIDN'T! Instead I went to the emergency department (what they apparently call it these days instead of emergency room) at the nearby hospital for 8-1/2 hours.
The entirely not fun way to get a rush MRI )

But then the real rollercoaster began )

Finally finished radiation )

Now the next chapter begins )

Thanks again, my wonderful pals, for listening and helping and all the everything you've offered me. You are the best.
💜
gwyn: (perfect tommy jidabug)
Soft foods suck. I never want to eat yogurt or anything like it again. I want potato chips and Cheez-Its and a big steak.

Ranting brought to you by the fact that I have dysphagia and can barely swallow stuff, including meds. I do not like it. Weirdly, my skin is barely red and I don't think I have much of the fatigue everyone said I'd get, but instead I have the sore throat and trouble swallowing big time, plus I'm having some kind of terrible new pain in my upper back that I don't know what it is or how to get rid of it, nothing's working.

Though last Friday literally all I could think of was Richard E. Grant as Withnail from Withnail & I, bellowing my subject line after they've been starving for a while: "I want something's flesh!" It was going through my head so much that I stopped and got a rotisserie chicken on the way home and while it was hard to figure out how to swallow without too much pain and it took me over an hour to eat what would normally take ten minutes, it was the best goddamn chicken I've ever had.

BUT! My last day of radiation is Wednesday, and they seem to be sticking to the plan of 20 instead of more. At least, no one has said I'm coming in for more. So hopefully, fingers crossed, the throat troubles will cease and this will get better and I won't be one of the people who gets permanent damage.

The past couple weeks recap )

I'm looking forward to hearing what they say about the radiation and whether they felt like it was successful. The bummer is that my doctor day this week is Thursday so I won't get to see Dr. Mehta, the radiation oncologist, and I really do want to see what he would say. He fistpumped when I told him I was able to turn my neck to the right when I was driving and not have sharp pain, and I think he'd be pleased to know that if it wasn't for this weird shoulder thing, I've been feeling pretty decent.

Then I guess I'll be starting infusions of the terrifying bone drug to build back some of the lost bone in my C6. Some of the potential side effects are alarmingly frightening, so I don't know how I feel about this part.

At some point here too, I want to get back to fannish stuff. I've been couch potatoing so much that I'm watching a fair bit of TV. Well, a LOT of TV. I should talk about it.
gwyn: (middleman german film)
It has been a few weeks since I updated and wow, lemme tell you, it has been a wild rollercoaster of a ride. I almost don't even know where to start, so much has happened. So apologies for the long post, but it's been pretty eventful.

Starting off with some amusement, I suddenly got two comments on my Kings story from Yuletide, which was so weird and unexpected because hardly anyone read it and even fewer left a comment and so to get two comments within a couple hours on a story that has been largely ignored was such a funny surprise. I couldn't even get my Kings-fan friends to read it! But it was nice because it was like they knew I needed something--they both arrived the night after I had the bone marrow biopsy and I was in a lot of pain and feeling kind of miserable. Fandom!

Also fandom! I had my appointment with the radiation oncologist last week (more about that later including the weirdest and most interesting alien sex tech stuff) and was whining at [personal profile] killabeez and a couple other people about having to drive every damn day up to First Hill, where for some goddamn reason Seattle decided to locate most of its hospital and medical offices within a three-mile radius. It's not called Pill Hill for nothing. They're also tearing up and rebuilding Madison, the street you take to get to most of these places, and to say it's a confusing nightmare is putting it mildly. It's been going on for years and will likely be going on for more years, so having to go up there is no bueno and I often won't be feeling great.

So [personal profile] killabeez organized a GoFundMe to collect some money so I could take Lyft when I wasn't feeling up to dealing with it, and to say I was overwhelmed is putting it mildly--I burst into tears when she told me. I have an extremely hard time asking for help and an even harder time accepting it, and I'm just so moved that so many of you were willing to help me out, even though I know times are really tough for everyone, especially with runaway global inflation and corporate greed. YOU GUYS ARE SO KIND AND GENEROUS. I'm really grateful, because I will also be going up there for infusions while I'm doing radiation as well, and I can definitely imagine there will be days with that where I'm just not capable of making that commute--it's really technically only 9 miles, but it's hella awful freeways + Madison Street Nightmare, and knowing I have an option is just incredibly wonderful. Thank you all SO MUCH. Just so much.

Riding the Tilt-a-Whirl and rollercoaster at the same time )

People keep telling me I'm being very practical and handling this so much more calmly than they would, but honestly, once I got over the initial shock with that inhumane way of telling me this, I've just been in full research mode because no one tells me anything, and it just...is what it is. I'm not happy about it, and it sucks beyond reason and I thought having colon cancer and skin cancer repeatedly was enough for one lifetime, but I guess I'm just a cancer magnet and it's gonna be what it's gonna be.

The thing that really makes me cry is when people are kind to me, that's when I lose it, and so the thing that's made me weepy is the gofundme and people offering to drive me places and even the ACA Navigator ladies telling me to send them any insurance stuff I don't understand or know what to do with and they'll help me. I was raised in the no-touching no-crying family, where I'd get berated or sometimes whacked if I didn't do things myself and bootstraps yadda yadda, so people caring is very emotional for me.

Sorry for the long post--sometimes I feel like this is where I can write it all down, so I don't forget everything. I'm already forgetting stuff that's happened in the past few weeks--it's overwhelming, to be honest, and it was exactly only one month from my first visit with the doc to the one last week about the muscle spasms. It's nuts how fast this is all happening.
gwyn: (sadness blue)
It's been a couple weeks since I posted last about the myeloma shenanigans. There's been...just a lot of activity and it kind of boggles my mind that despite so much happening, I still don't have a true diagnosis, even though the oncologist is "99 percent certain it's myeloma." And it's mind boggling as well that all this has only been about a month. It certainly feels like years and years.

Everything happening everywhere all at once )

Also, the funniest thing in the world to me is that this is constantly referred to as a rare cancer, and yet almost everyone I've talked to about it knows someone who's had it or had it before they died.
gwyn: (ordinary day _silent_rage_)
It's been almost two weeks since I posted about my weird Schrödinger's terminal illness, but I haven't had much to report in terms of forward momentum, though things are starting to happen not so much all the time.

Where I am now is not much different from where I was before )

On the nicer side, [personal profile] belmanoir knitted me the most beautiful shawl! It's lavender and has this lovely pattern with different stitches on two halves, and they're so intricate and pretty, and the merino wool is as soft as angel hair. I developed a wool allergy a while ago, and can't even wear my finest, priciest cashmere or merino or alpaca without something underneath it,, but this is so snuggly and cosy and has the softest hand. And a three-year-old friend of hers suggested that it needed to have a heart-shaped button on it, because that's how three-year-olds roll, you know, and she was absolutely correct--there's a button in the middle of it and I love it.

I am just in awe of people who can knit and crochet and needlepoint. I'm so lousy at that sort of thing, and how someone can follow a pattern and knit these delicate, artistic stitches is beyond me. I want to sit down with my copy of Sailor's Delight, a cup of French breakfast tea, and my shawl and read.

I need to finish Reverie, especially if I'm gonna have a limited lifespan left, but I also now want to write the Groundhog Day story for Kings that I'd been thinking of writing for Yuletide before bel whacked me on the head and brought me to my senses that it wasn't doable in my state. Though judging by the complete lack of response the Kings story I did write for Yuletide got this year, I'm not sure if that's worth the effort. It was perennially kind of a popular Yuletide fandom, but apparently that's not true anymore? Or maybe it was just me. I still love my poor tortured gay baby, though.
gwyn: (wendy fights like girl)
A lot has happened since the last time I posted. None of it especially great. I will start with the better stuff, though. I have been watching a lot of things on TV because I have HBO, Showtime, and Paramount Plus for a short time, so have been catching up on the buzzy HBO shows and the Trek shows on P+, most of which I've been a bit meh about, but am close to finishing Picard to get ready for its third season. Recently I watched Station Eleven to go along with my other post-apocalypse show, The Last of Us. If you'd told me I was going to get into a fucking zombie show based on a fucking video game (I hate video games) and then fall head over heels for a Nick Offerman character, I would have sneered at you, but here we are. I started watching TLOU for Pedro Pascal, found out there was bonus Anna Torv, and then the third episode wrecked me so much and I loved it so much and I just...well, as I said, here we are.

The Last of Us episode 3 and other show spoilers )

Anyway, there's not a lot of zombie crap in the episode and if you're worried about watching it, and jump scares, etc., I would happily tell you when to FF or look away if you are curious to watch it. If for nothing else, the line "Not today, you New World Order jackboot fucks" is worth it alone. Ugh, Bill + Frank 4ever

And then there was Station Eleven, A different kind of apocalypse )

Anyway, it's been nice to have stuff to watch, because life is pretty scary right now.
Bad health stuff )

None of which is helped by that fact that I have fast-growing cataracts and I can't see anything! cut for vision stuff )

All of this feels way too flaily. I suppose that's why I'm so caught up in gay middle-age men romancing each other in the zombie apocalypse.
gwyn: (bumble _hellsbelles)
One of the things about this awful neck/shoulder thing is that I'm having to do a lot of my morning routine stuff on my phone while I try to sit somewhere my head can rest against something, unlike my desktop computer seating. There's really only one place in my house where my neck and head and shoulders are supported; the curse of being tall is that everything hits me just under my scapulas. So I'm trying to read and respond to emails, check the websites I read first thing, etc. on my phone and that often includes Dreamwidth.

I had to get a new style because my old one was unreadable on mobile; I don't necessarily love the new one but I also was not in the mood for my normal preference for bright colors or pretty pastels and went with a gray and dusky purple theme, but I'm having trouble getting used to reading white text on dark. I have never liked that much, there's not enough contrast, and I'm going blind. (Did I mention that here? I don't think I ever did. Ugh, that's another whole awful story that I don't have spoons for.) It's also pretty much impossible to make an entry on the phone; the type is so utterly minuscule that I can't use it until I can get enough stamina to power through on my laptop or desktop. I wish DW was a bit easier.

Yuletide is definitely a mixed bag this year. Gift receiving-wise, it was fantastic, with two stories in a fandom I've asked for for years and a Madness treat as well, but gift giving-wise, it's been pretty soul crushing. The recip said she'd come back with a comment and just left a placeholder thanks, but hasn't been back, and there've been almost no comments, just people clicking the "meh" button, even though this was one of those longtime Yuletide stalwart fandoms. I was happy with what I wrote and thought it turned out quite well, considering that I was in excruciating pain while writing and editing it. But I may be one of the few who thought it was decent.

I haven't read more than one story, myself, for a variety of reasons, but most especially because I've been working. My author wanted to know if I could get her manuscript back to her around the beginning of the month, so I've just been toiling over that instead of scrolling through the archive. Someday! Eventually!
gwyn: (walken wonderland)
Just wanted to say I'm still here, still reading, sometimes commenting. But I have a severely debilitating shoulder/neck problem that I've been in physical therapy for but that is not really going away and it makes it really difficult to be at the computer--difficult to be anywhere but flat on my back. Which is obviously also making it pretty hard to work on my Yuletide story. I was starting to write something but then [personal profile] belmanoir wisely yelled at me that my chosen idea was impossible to do on such a short timeline and in my current condition, so I've pivoted and am trying for one of the classics. I really don't want this to be the first year I default.

Well, that's all I can do for now, except that I would also love to send holiday cards to people this year, I have a ton of them. If you'd like to receive one, please leave me a comment (screened) with your preferred name and address. They are not overtly religious but they do use "Christmas" in the greeting.
gwyn: (bucky end of the line)
My Yuletide assignment is both pretty much what I expected and also not; there weren't many requests for this fandom (in fact, last year it wasn't even nominated for the first time in...many years) and I was hoping against hope for something else in which I've had a story burning a hole in my pocket for years. I did have an idea for something in my assigned fandom, but it will be challenging to make it fit for the recipient because their wants seem very specific, so we shall see what I can do. First, though, I want to finish a new chapter of Reverie, since it's been over a goddamn year since I updated it.

I'm really ashamed of that--part of the reason I've done WIPs on some things is that it was the only way I knew to make myself finish it, but it just seems events have conspired over and over to stall me out, not least of which was an armed right wing coup attempt when I was in the middle of working on a chapter, and of course Chadwick Boseman's death when I was writing another. I'm hoping that seeing Black Panther: Wakanda Forever might also help jump start things again, since Shuri is the other main character in my story (which in itself was also a problem, just because Letitia Wright is a problematic person and I have to try to separate my feelings about her vs. my love of Shuri).

Of course, as soon as I got started on trying to remember how to write, I got hit with a ton of work. Some of it was super fun, including three queer romances in a row that were just so much fun to read. But others were not so much fun: the magazine I work on contacted me a while ago at an email address I used when my computer died, and which I don't use much anymore because no one really sends to it now that I have a new computer and access to my regular account. I check it only once in a great while, and my client decided that since I hadn't responded withn like a week, he had to find another copyeditor for his next issue of the magazine, EVEN THOUGH he has my freaking phone number and has no problem with texting me when he's panicking and has done for the past 13 years, AND he did not even try to use my regular email that, again, I've used for over 13 years. Which is fine, whatever, it's just going to probably mean that when I proof the issue, I'll be tearing my hair out over stuff that needs changing because it wasn't done to the standards we've developed over the past umpteen years. The only stories that will be as clean as I want will be the small handful I worked on.

But the deadlines are always ridic, and now it's cutting in to my time for writing again. AND THEN he contacted me with no warning about a book that his publishing company is putting out that was "edited" by a couple of the legendary guys in this particular field, who of course might be the best at their work but they are not word people nor do they understand basic layout and publication design, and my publisher wanted it back in a week. Like, this thing is just walls of text in a terrible sans serif font written by people who don't know how to write. And my client is right, it badly needs proofreading, but it's giving me a headache and I keep looking at all the time slipping away from writing.

Lots of other life stuff is interfering, as well, but the less said about that, the better, because otherwise I'll cry all over my keyboard. I just wanna try to write this chapter, wrangle some kind of edit on it so it doesn't suck as badly as it will and mitigate some of the disaster that is my writing these days, and then start on Yuletide. Why is that so much to ask?
gwyn: gugu mbatha-raw on fast color poster (fast color)
I nominated some things for Yuletide, even if I'm not sure yet if I'll participate (I'm really having a lot of trouble with it the past few years, because the pool of stuff I'm interested in keeps shrinking since they allow crossovers in the count, and my fandoms are filled with people who write like 50 words in my fandom as part of a huge collection with 500 other fandoms). I used my third slot for a friend, but now I'm kind of wishing I hadn't because I was hoping someone else might nominate Fast Color (the amazing 2018 movie with Gugu Mbatha-Raw that's a really fascinating take on superpowered women), but it doesn't look like anyone's taking up my request. Eee, someone did! Yay, something I can request!

Anyway, I nominated:
Better Off Ted
Phil Myman
Lem Hewitt
Ted Crisp
Veronica Palmer
(I would love it if anyone who's seen this added some characters)

Kings
Jack Benjamin
David Shepherd
Ephram Samuels

Selfie
Henry Higgs
Eliza Dooley
Charmonique Walker
Freddy

I actually have ideas I could write for a couple, although whether I could be lucky enough to get assigned someone who'd want them is always the question. I was hoping someone might nominate 12 Monkeys, too. Three nominations is just...really not a lot. Especially when the pool is constantly shrinking.

In other news, I've had a bunch of cool books to work on lately as well as some fun fanfic to read. It's just such a...relief sometimes to work on stuff that's really well written and the characters really draw me in. But it's also been a good excuse--the being busy part--to not work on my own fanfic, and I started finally getting back into writing Reverie but then stopped. I need to start again. That stupid thing has languished for over a year, and it's very hard to motivate myself to get back in when even the few people following the WIP stopped reading. It could vanish and it wouldn't matter, I think. (It's also hard because it takes place in Wakanda, and Chadwick Boseman's death made it so painful to keep writing my fantasy world of a place where T'Challa is still with us.)

I keep taking COVID tests and they keep showing negative, but I've felt like garbage for a few days now--but it's not high enough level to be a cold, and it's not low enough level to just be tired or something. I wonder if I picked something up at a restaurant, but whatever it is, it's just sort of...there.

Speaking of restaurants, the West Seattle Bridge, which was shut down two and a half years ago with no warning, the day after Washington's stay at home order was given, was reopened Saturday night on the 17th. I can't even tell you how happy I am about that--it was just such a freaking ordeal to go to medical appointments or even just to see people (all my friends live north of here) because you had to drive south and then north again and it involved all these drawbridges that were frequently up, and all the roadways were clogged with cars and buses because they weren't built for the sudden influx of traffic. Road rage has kind of become the order of the day, because everyone hated how hard it was to get out of here, and for some reason, the going out of here was harder than the coming in. I had dozens of trips to make for my eye care, and have had a lot of medical appointments at my clinic, and I would be filled with dread for days leading up to having to go out. They also shut down the bus near me during the pandemic, so driving was often my only option. But now we are reunited with Seattle and it feels so good. [personal profile] minim_calibre and I drove down to house o' meat (Outback) the other night so we could use the bridge. it was glorious--three minutes to I-5! Whee!
gwyn: (veronica takethat _jems_)
Wow, very long time since I posted anything besides the last story announcement for [community profile] intoabar. I keep meaning to post, and then I get seized with ennui or pain or just a general feeling that there's too much to handle. Right now, I'm avoiding dealing with the heatwave we're in, and trying to spend a little time in a cooler space even though it's hell on my spine issues.

I had planned to have a year of health catch-up events scheduled, and was doing somewhat okay about it: had my long-delayed followup colonoscopy in March, and that went well and I have now graduated to being able to go five years in between procedures. It helps a lot because they really do a number on me; I've had people constantly dismiss them to me, insisting it's no big deal and implying I'm a baby, but I'm like, you didn't get cancer the first time you did one, so shut up. So being able to go to a five-year schedule is big, and I asked him before the procedure what the odds were that I'd have cancer again and he said, "You won't get cancer again. Now that we know what we know, you have your colonoscopies and if there are polyps, we cut them out before they can become cancerous." So I thought that was interesting. I knew it was usually slow growing, but I hadn't realized quite how much. It's weird, as much as I learned about colon cancer when dealing with it, I don't think I still really knew much about it at all.

Then I had to get my eyes checked, because I have been unable to see clearly for some time and needed new prescriptions. I have really unusual issues so I cannot just get cheap glasses online, and I was waffling for a long time about going to my longtime eye doctor or the new place up the street, but ended up deciding to brave the awful trip downtown to see my regular guy, just because they know all my weird problems. It's been...challenging, nothing is working out right and I'm having to keep going back and I know they're as frustrated as I am. When I made the appointment, they said I hadn't been in since 2017, and I was sure that was wrong--till I realized that oh yeah, that made sense. A few months after my last visit there, I got diagnosed with the colon cancer, so yeah durr, it had been a really long time.

I got one thing that worked out though--he recommended occupational lenses, or computer glasses, and they kept saying their clients always said they were life-changing. I was skeptical, but goddamn, they really are. You're not supposed to see well with distance with them, but I actually do see pretty well, but for the minute detail I have to see, especially when I'm proofreading, they're a game changer. If you have trouble with computer work, I highly recommend giving these glasses a try.

Then I had planned my yearly exam (and last pap test ever! the only thing good about getting old!), and then finding a new dentist since I haven't been since before the pandemic, but I got derailed by yet another skin cancer on my face. So I have to go in next Wednesday and get my face cut up again, and practically bleed to death, and try to get them to give me legit painkillers without treating me like an addict. So excited.

My physical went okay, even with the lecture about my usual high cholesterol and how I'm gonna have a heart attack or stroke. I have always had naturally high bad cholesterol, but it gets worse as I get older. Shrug. I actually don't care. I have no interest in living a long time. I do have a serious sodium problem, though, in that it's really low because I take a diuretic, and that explains my chronic lightheadedness and other issues.

I had no idea that they had developed vaccines for pneumococcus and hepatitis B. It almost made me cry to get the shots for them--I couldn't help thinking of the years I volunteered at an AIDS help organization in the late '80s-90s, and how prevalent hep B was among the patients. How amazing a vaccine could have been then. And I guess there's also one for A, and while C doesn't have one, it does have much better treatment options now. It's a weird thing to get emotional about, but there you are.

I also finally got my car in for servicing, but alas, discovered some big issues to fix, and then I want to get some things addressed on my house, but I'll have to see what happens with the face surgery. That'll be a lot of money. And my regular client is not paying me, and I'm stressing the fuck out about that. I can't tell if he's just being flakey as usual or ghosting me. But I have some really fun upcoming work two great authors, so that's something to look forward to. Also Blues gets his checkup on Monday, and that always ends in him having to have a dental, so...not excited about that. The universe giveth, the universe taketh away.

I am working on the next chapter of Reverie. I dropped off the face of the earth as far as anyone knew after the last chapter, a fucking year ago in August, and I feel so ashamed. I've only written three things since then, all short stuff, and it makes me feel so guilty that the like three people reading it were left hanging.

Then I got a really weird idea for a kind of 616/MCU canon divergent AU that I think is so dumb and odd that it would have an audience of maybe two people, but I can't stop thinking about it, so I need to complete Reverie so I can tackle it.

Anyways, that's mostly it. Just enduring, waiting till our bridge is said to be reopening in September and going to do things outside my neighborhood won't be an hours-long torture affair, and trying not to melt into a puddle of sweat. How's by you?
gwyn: (bumble _hellsbelles)
(Quote by Eugene Levy in Splash, something I say at least monthly.) We have had: Massive power outage affecting most of the area—tens of thousands of customers; massive internet outage a few days later, meaning I missed my weekly zoom meetup with friends; flooding from the relentless fucking rain; and a car accident in the intersection on the corner of my front yard. Eventful!

FINALLY I am boosted on my Pfizer vaccine. It has been a complete clusterfuck round these here parts, because of the city basically abandoning my little peninsula here in West Seattle where we are mostly trapped with limited options. There are only a few pharmacies that do the shots and they have very limited hours for vaccinations, the city essentially shut down everything here after the initial rush of vaccinations last summer, and a lot of the private businesses that offer shots elsewhere in the city don't offer them here. Twice I've gone somewhere and been turned away, and that doesn't count the time I could have got one but I couldn't wait the hour or more in line.

The earliest appointment I could get was right before Christmas, but there was a clinic at this community center and I'd heard misinformation that it required an appointment for the couple days a week they offered shots--turned out they did take walk-ins, so I went yesterday, fearing I'd be standing in line for hours. I was in and out in less than ten minutes, even with paperwork and getting into the wrong line, like the doofus I am.

They were excellent people--a woman-owned local business, super friendly and incredibly efficient even though they got slammed right as I got there (also gave you bright tie-dyed Band-Aids). But of course, the city is now fucking them over and not continuing to work with them, so they can only offer their clinics on Sundays. They stepped in to fill a huge need when the city took away the only vaccination site here and then when little kids were cleared for vaccinations, for instance, and they're here for those of us who are having trouble getting boosters, and they were working without a contract even, despite the city basically giving up on us (our lil peninsula isn't really all that little; we're a significant percentage of Seattle's population). I am making sure to send them a thank-you, because I was starting to get really discouraged at getting my shot anytime before the holidays from the for-profit companies.

I feel so guilty that I have not had the extreme reactions to vaccinations other people seem to have. The worst for me was my first shot, but that was still mild compared to a lot of folks, and I had nothing but a super sore arm for the second and this booster, though last night I extremely uncharacteristically slept like the dead. OTOH, I understand that people who had COVID-19, even mild, did have stronger reactions to the first shot than the second, and that made me 99.9 percent sure that I had indeed had it back in March/April 2020, when I thought I did. But there were no tests for people who weren't rich and famous, so I will never absolutely know for 100 percent certain. I haven't escaped unscathed from other vaccinations: the shingles shots last year were brutal, my last flu shot was rough, and so was my last tetanus booster.

Thanks to everyone who sent birthday wishes; I had a nice day, and got lovely cards from people here (thank you, you guys!) and had brunch with friends and watched a hilariously terrible show with someone, so it was nice. Plus I got to see my BFF from way back the night before, now that he's moved back here to the PNW.

Is there anyone who's familiar with the Expanse books who might be willing to chat with me? Ideally I'd love someone who might be willing to voice chat (we don't have to do video) because my hands are so bad right now, but I'll take any help I can get.

April 2025

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