All I need is a miracle
Oct. 26th, 2024 04:12 pmIt's been so long again! I swear I am going to do my Bear season 3 and Grand Unified Theory of Season 3s soon! Really, I will! Today is not that day, though.
It feels so weird to not be doing Yuletide this year. I literally don't understand what to do with myself, because this time of year is always spent with 1) birthday fic panic and 2) Yuletide panic. But this year, I was up against the dreaded "there is nothing I want/can write that anyone else wants/offers" and I'd either end up not being able to get matched (this has happened to me before) or having to find something popular that I could match on and being stuck.
Also, last year was one of those rare years where I got my dream assignment (I've had those a few times and it's so fucking great), and it was also kind of my dream assignment because I'd wanted to write it for a looong time and one of my dearest friends requested it, so I knew all of her happy places and it just worked out so perfectly... Those have been my fave Yuletide fics, I look back on them so fondly because I not only got to write someone else's dream, but my own came true as well. And those years, so so rare, where you not only get to write your dream but someone else writes you your "someday, my prince will come" true love fic?? Hard to top.
So in a way, that kind of helped me make the decision to skip this year, but it just feels so wrong after so many years! I have to see if I can find some way, somehow, to actually write a birthday fic. My b-day is on Thanksgiving this year, and it's a milestone one, so I was feeling...incredibly weepy about it. I used to love Thanksgiving, not because of the meaning of the day (with its baked-in colonialist racism) but just because of the food and I always loved it when sis_r and I had our birthday on it, because it was like best food AND birthday cake. I'm ashamed to say I got super weepy about being alone this year, knowing I'd be sick because I have chemo the day before, in front of my ex, and he texted me a few hours later and said "It's official and there's no arguing, you're coming over for thanksgiving." His wife is an amazing cook, they live a few blocks away, so...it's something. I won't be lonesome all day, at least. It's not the same without my sister, of course, but what is.
I am starting a new drug regimen today (copyeditor life complaint: WHY can no one get this right? It's regimen, not regime (system of government) or regiment (military unit); this drives me nuts), some of which is forced by my insurance, grrr, but I've been plateaued on my most important number marker for whether I can achieve a remission for over seven months, and my oncologist told me about stuff we could do. I chose this new drug (it's also a thalidomide analog, but I guess a kind of next gen one that is supposed to knock residual myeloma cells out) first, and said if that doesn't work, we could escalate to the next treatment, which is less ideal, and so on. I'm a little scared, I took my first pill today and it has some more intense possible side effects than Revlimid, but I'm keeping my Apple watch on in case I like, keel over or something.
They won't accept the most-used drug for multiple myeloma first-line treatment, Velcade, which I've had injected into my tum-tum fat weekly for over a year and a half, so now I guess I will only be going once a month to the clinic, which is odd. I mean, it's okay, in that I'm so tired and have been waffling about stopping treatment because of being le tired, but at the same time, I finally finally had movement on my number and it was so close to the magic zero for remission standard, and now I don't know what will happen.
Plus it took forever because at first insurance denied coverage of the thalidomide-based pill, and so I haven't been taking the other most important drug for these few weeks, which means I don't know what will happen now to my M-spike number. Arg! I hates it so much, precious. I had been hoping to talk with my doc about getting rid of dexamethasone, but it's a requirement for insurance coverage of this new drug.
And it might all be moot anyways! I have to go on Medicare Nov. 1, and I'm in limbo till I get my Part D and Part G information. That has added a lot to my stress, since I had a deadline of October 31 to get this new medication, and it costs 18k a bottle for a three-week supply. America! There's a new Medicare law that starts in 2025 that will help me with this (well unless Assface wins the election), but for November and December, I'm not certain how I will be able to pay for it, because most of the financial aid has been given out in January and February. That's a future me problem though.
I've been so lonesome and bored that I decided to try out this thing I'd read about, where people go to cafes and bars and read books for an hour--it's basically a reading club, but you can read whatever you want. This one is an offshoot of a larger group called Silent Book Club. I went to a coffeehouse near me and it was super crowded, so I ended up in a corner by myself and didn't have anyone near to talk to, so half the fun of it was mitigated, plus I felt weird and awkward as hell. But it was nice to get out of the house, and OMG, get back to reading for leisure instead of work. I haven't read a book of my own choosing for years and years, since I started copyediting fiction basically. It's such a busman's holiday, but I'm getting less and less work these days so I really wanted an impetus to get back to reading for pleasure. I recommend it, if you're looking for something to prod you to get out.
Funnily enough though, one of the major clients who ditched me last year has suddenly come back in need of my services. Right when I had a book proofread that's due on Monday. Ha ha ha.
I have been rewatching so many older shows. So many of them, I'm like, man, I almost wish I hadn't revisited this. But I'm in S2 of Fringe and that's definitely not the case with this one--the ep Jacksonville, which I watched last night, is still my fave and even though I felt the show really fell down by S3, especially when they seemed to change the focus from Olivia to Peter (and also kept killing off characters I adored), it's still so good and I wish so much there'd been more support for it. Also wish they could have kept filming in NYC because it all felt so different when they moved to Vancouver. Excited to be coming up on White Tulip!
Dropped my ballot in the drop box (we're all mail-in in Washington) the other day, on my way to see Venom: The Last Dance. Happy about the voting, but wow, the movie was...not so good. I'm glad for the people who love the Venom movies, but they have just not done it for me at all. I was happy to see Mrs. Chen again, though.
It feels so weird to not be doing Yuletide this year. I literally don't understand what to do with myself, because this time of year is always spent with 1) birthday fic panic and 2) Yuletide panic. But this year, I was up against the dreaded "there is nothing I want/can write that anyone else wants/offers" and I'd either end up not being able to get matched (this has happened to me before) or having to find something popular that I could match on and being stuck.
Also, last year was one of those rare years where I got my dream assignment (I've had those a few times and it's so fucking great), and it was also kind of my dream assignment because I'd wanted to write it for a looong time and one of my dearest friends requested it, so I knew all of her happy places and it just worked out so perfectly... Those have been my fave Yuletide fics, I look back on them so fondly because I not only got to write someone else's dream, but my own came true as well. And those years, so so rare, where you not only get to write your dream but someone else writes you your "someday, my prince will come" true love fic?? Hard to top.
So in a way, that kind of helped me make the decision to skip this year, but it just feels so wrong after so many years! I have to see if I can find some way, somehow, to actually write a birthday fic. My b-day is on Thanksgiving this year, and it's a milestone one, so I was feeling...incredibly weepy about it. I used to love Thanksgiving, not because of the meaning of the day (with its baked-in colonialist racism) but just because of the food and I always loved it when sis_r and I had our birthday on it, because it was like best food AND birthday cake. I'm ashamed to say I got super weepy about being alone this year, knowing I'd be sick because I have chemo the day before, in front of my ex, and he texted me a few hours later and said "It's official and there's no arguing, you're coming over for thanksgiving." His wife is an amazing cook, they live a few blocks away, so...it's something. I won't be lonesome all day, at least. It's not the same without my sister, of course, but what is.
I am starting a new drug regimen today (copyeditor life complaint: WHY can no one get this right? It's regimen, not regime (system of government) or regiment (military unit); this drives me nuts), some of which is forced by my insurance, grrr, but I've been plateaued on my most important number marker for whether I can achieve a remission for over seven months, and my oncologist told me about stuff we could do. I chose this new drug (it's also a thalidomide analog, but I guess a kind of next gen one that is supposed to knock residual myeloma cells out) first, and said if that doesn't work, we could escalate to the next treatment, which is less ideal, and so on. I'm a little scared, I took my first pill today and it has some more intense possible side effects than Revlimid, but I'm keeping my Apple watch on in case I like, keel over or something.
They won't accept the most-used drug for multiple myeloma first-line treatment, Velcade, which I've had injected into my tum-tum fat weekly for over a year and a half, so now I guess I will only be going once a month to the clinic, which is odd. I mean, it's okay, in that I'm so tired and have been waffling about stopping treatment because of being le tired, but at the same time, I finally finally had movement on my number and it was so close to the magic zero for remission standard, and now I don't know what will happen.
Plus it took forever because at first insurance denied coverage of the thalidomide-based pill, and so I haven't been taking the other most important drug for these few weeks, which means I don't know what will happen now to my M-spike number. Arg! I hates it so much, precious. I had been hoping to talk with my doc about getting rid of dexamethasone, but it's a requirement for insurance coverage of this new drug.
And it might all be moot anyways! I have to go on Medicare Nov. 1, and I'm in limbo till I get my Part D and Part G information. That has added a lot to my stress, since I had a deadline of October 31 to get this new medication, and it costs 18k a bottle for a three-week supply. America! There's a new Medicare law that starts in 2025 that will help me with this (well unless Assface wins the election), but for November and December, I'm not certain how I will be able to pay for it, because most of the financial aid has been given out in January and February. That's a future me problem though.
I've been so lonesome and bored that I decided to try out this thing I'd read about, where people go to cafes and bars and read books for an hour--it's basically a reading club, but you can read whatever you want. This one is an offshoot of a larger group called Silent Book Club. I went to a coffeehouse near me and it was super crowded, so I ended up in a corner by myself and didn't have anyone near to talk to, so half the fun of it was mitigated, plus I felt weird and awkward as hell. But it was nice to get out of the house, and OMG, get back to reading for leisure instead of work. I haven't read a book of my own choosing for years and years, since I started copyediting fiction basically. It's such a busman's holiday, but I'm getting less and less work these days so I really wanted an impetus to get back to reading for pleasure. I recommend it, if you're looking for something to prod you to get out.
Funnily enough though, one of the major clients who ditched me last year has suddenly come back in need of my services. Right when I had a book proofread that's due on Monday. Ha ha ha.
I have been rewatching so many older shows. So many of them, I'm like, man, I almost wish I hadn't revisited this. But I'm in S2 of Fringe and that's definitely not the case with this one--the ep Jacksonville, which I watched last night, is still my fave and even though I felt the show really fell down by S3, especially when they seemed to change the focus from Olivia to Peter (and also kept killing off characters I adored), it's still so good and I wish so much there'd been more support for it. Also wish they could have kept filming in NYC because it all felt so different when they moved to Vancouver. Excited to be coming up on White Tulip!
Dropped my ballot in the drop box (we're all mail-in in Washington) the other day, on my way to see Venom: The Last Dance. Happy about the voting, but wow, the movie was...not so good. I'm glad for the people who love the Venom movies, but they have just not done it for me at all. I was happy to see Mrs. Chen again, though.